jigglyknits

GERD or Gastroesophageal Reflux Disease (chronic acid reflux) is pretty common in people with CF. I don't have an official diagnosis of ...

Having grown up in the 80s and 90s when there wasn’t as much known about CF and people with it weren’t living as long, the priority was gai...

During a clinic visit a few winters ago, while discussing ways to keep lung infections at bay, my doctor said that my option was to start...

The incision on my stomach was pretty big! My first surgery was at 2 weeks old. I had a pyloromyotomy (say that 3 times fast, I dare you...

We are the world's okayest sisters! When you have a disease that takes up a lot of time and energy, it's easy to forget that yo...

Yesterday was quite a busy day. I had a follow up clinic appointment at 11am and since I'm out of vacation days I worked from 5-9, so I ...

I know by now I've mentioned a couple of times that I've only ever been hospitalized once (I'm not counting surgeries, that'...